Saihi supervise une journée d’étude sur le Plan national des maladies rares en Algérie
Summary of the National Rare Disease Plan Study Day in Algeria
On Thursday, Algerian Health Minister Abdelhak Saihi inaugurated a study day dedicated to the National Rare Disease Plan, attended by government officials and representatives from various national organizations. The event, held at Djamaa El-Djazair, aimed to address the theme "Together for the National Rare Disease Plan in Algeria."
In his speech, Minister Saihi emphasized that managing care for individuals with rare diseases is a key priority for the President of the Republic. He conveyed that the government has been instructed to spare no effort in establishing an effective mechanism to ensure high-quality care for these patients. Notably, he announced significant progress in the treatment of rare diseases, including the forthcoming update of the list of rare diseases in 2024 and the development of a comprehensive national plan. This plan aims to enhance early diagnostic mechanisms by utilizing modern resources and creating a reliable health data platform. The involvement of patient associations and attention to their concerns were also highlighted as essential components of the initiative.
Professor Kamel Sanhadji, President of the National Health Security Agency (ANSS), reiterated his agency’s commitment to support the Health Ministry throughout the development of the National Rare Disease Plan. He noted the President’s special interest in the care of patients with rare diseases.
Mohamed Mamoune El-Kacimi El-Houceini, the rector of Djamaa El-Djazair, praised the organization of such events and expressed hope that the discussions would contribute substantially to enriching the ongoing development of the National Rare Disease Plan.
During the event, several specialists discussed challenges and prospects related to rare diseases, particularly regarding early diagnosis. They underlined the importance of digitization in improving patient care and outcomes.
This initiative reflects Algeria’s commitment to offering better healthcare services to individuals with rare diseases, and it seeks to lay the groundwork for systematic improvements in their treatment and management.
